Lessons Learned (Today's Daily Remembrance)

Today’s card invited me to consider what I have learned from a mistake I’ve made. What sprung to my mind, based on current issues I’m facing, is that I’ve lived “as-if” at times in my life to my own detriment. Specifically, I’ve muddled my way through life as if I do not have a disability, when in fact I do.

I am in the process of applying for accommodations at my job due to my PTSD. I do not know if they will be granted or not, but I recognize in coming to the point where I need to request them that I have finally accepted that I am significantly affected by my mental health condition. I am not doing “fine.”

For over a decade, I’ve lived in a shadowland of feeling completely overwhelmed emotionally but also terrified that the shaky progress I’d made towards autonomy would instantly collapse if I asked for mercy for any reason. I’ve been driven further into the fog by experience after experience where I’ve conveyed my limitations in personal relationships, only to have them be completely ignored or used to harm me. I’ve little faith that institutional mechanisms will prove more reliable, but I have to at least try to seek them.

I feel weak and pathetic for not being able to muster the resolve to defeat my demons, as if where I’m at in terms of functioning is a choice I get to make. It’s as if I’ve run non-stop for almost 15 years and yet continue to question why my knees are bone-on-bone. As though I’d chose this life if presented alternatives without PTSD.

My mistake has been not only in living without accepting my limitations, it has also been in believing my situation to be feast or famine. I kid you not, my conception of my world is one where I work as a professional and make a solid income or one where I’m homeless, with no room for possibility in between. Prior to the last few weeks, I honestly never considered attempting to get accommodations, as I figured my only alternative, if I could not manage anymore, was to quit my job. I question which other areas of my life I hold in the same untenable perfect-ruined dichotomy.

Are there any areas of your life where you live “as-if” and struggle to accept the true nature of your situation? What would it look like to face reality? Are there any gradients available between “all is well” and “it’s gone to hell” in the issue with which you are dealing?

Indulge in Self-Care (Today’s Simple Pleasure)

As a person affected by multiple chronic physical and mental health conditions, including trigemnial neuralgia, complex PTSD, neck and arm radiculopathy and an undiagnosed systemic illness that has left me dehydrated and exhausted after multiple episodes last night that included digestive distress, fainting and low body temperature, I have no spoons to give today. The daily chores that must be completed to keep me fed and my house cleaned seem significantly more insurmountable than they do when my physical state is healthier. Taking time to engage in a simple pleasure on a day like today is another task rather than a bright moment of joy, but I felt determined to persist as I know giving up when I feel like this will only restart a cycle of depression.

As I use my Simple Pleasures cards, I am giving myself permission to adjust their instructions to a certain extent. Today’s draw was actually to buy up to five dollars in lottery tickets, but I know the excited anticipation they could perhaps bring would be missing with me feeling as sick as I am. Instead, I decided to use the money to buy myself flowers, which have a coalescence connotation which feels appropriate to my current state. I like the fact that they will last at least half a week and will continue to uplift my spirit as they fully blossom. Everyone deserves to have the ability to engage in self-care when they are feeling down; I am grateful for the privilege of being able to do so for myself.